The Resource Care of the dying child : pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases, by Nicole L. Rawle

Care of the dying child : pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases, by Nicole L. Rawle

Label
Care of the dying child : pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases
Title
Care of the dying child
Title remainder
pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases
Statement of responsibility
by Nicole L. Rawle
Creator
Subject
Language
eng
Summary
  • Background: Each year 55,000 children die in the United States (Children's Hospice Internationl [CHI], 2004; Initiative for Pediatric Palliative Care [IPPC], 2003). The vast majority of children's deaths, 75-85%, occur in hospital settings with most in pediatric intensive care units (Field & Behrman, 2003). Oftentimes, a nurse is at the bedside of the dying child. Determining the barriers and supportive behaviors in pediatric end-of-life (EOL) care is needed
  • Research Questions: 1. What are the sizes and frequencies of selected obstacles in providing EOL care to pediatric patients as perceived by pediatric nurses? 2. What are the sizes and frequencies of selected helpful behaviors in providing EOL care to pediatric patients as perceived by pediatric nurses? 3. What are the perceived obstacle magnitude (POM) scores (the obstacle size mean multiplied by the obstacle frequency mean)? 4. What are the perceived supportive behavior magnitude (PSBM) scores (supportive behavior size mean multiplied by the supportive behavior frequency mean)?
  • Design: A descriptive, cross-sectional quantitative survey design
  • Sample: A geographically dispersed, national sample of 1047 members of American Association of Critical Care Nurses (AACN) who had provided EOL care for inpatient children with life-limiting illnesses and who read English
  • Method: A 76-item questionnaire that was adapted from three similar surveys with critical care nurses (Beckstrand & Kirchhoff, 2005), emergency nurses (Beckstrand, Smith, Heaston, & Bond, 2007) and oncology nurses (Beckstrand, Moore, callister, & Bond, 2008), was mailed to subjects over two mailings. Subjects were asked to rate the size and frequency of listed obstacles and supportive behaviors in caring for pediatric patients at the EOL
  • Results: Return after two mailings yielded 474 usable questionnaires from 985 eligible respondents for a return rate of 48.2%. The three items with the highest perceived obstacle magnitude (POM) for size and frequency means were: (1) language barriers (POM = 17.73); (2) parental discomfort in withholding and/or withdrawing ventilation (POM = 17.69); and (3) providing a peacful, dignified bedside scene for family members once the child has died (PSMB = 18.14)
  • Conclusions: Pediatric nurses play a vital role in caring for dying children and then families. Overcoming language and communication barriers with families and between interdisciplinary team members could greatly improve the EOL experience for dying children and their families
Cataloging source
UPB
Degree
M.S.
Dissertation year
2009
Granting institution
Brigham Young University, College of Nursing
Index
no index present
Literary form
non fiction
Nature of contents
  • bibliography
  • theses
Label
Care of the dying child : pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases, by Nicole L. Rawle
Instantiates
Publication
Bibliography note
Includes bibliographical references (leaves 24-32)
Carrier category
volume
Carrier MARC source
rdacarrier
Content category
text
Content type MARC source
rdacontent
Dimensions
28 cm.
Extent
52, [11] leaves
Media category
unmediated
Media MARC source
rdamedia
System control number
(OCoLC)ocn506410611
Label
Care of the dying child : pediatric nurses' perceptions of obstacles and supportive behaviors in end-of-life cases, by Nicole L. Rawle
Publication
Bibliography note
Includes bibliographical references (leaves 24-32)
Carrier category
volume
Carrier MARC source
rdacarrier
Content category
text
Content type MARC source
rdacontent
Dimensions
28 cm.
Extent
52, [11] leaves
Media category
unmediated
Media MARC source
rdamedia
System control number
(OCoLC)ocn506410611

Library Locations

    • Harold B. Lee Library Brigham Young University, Provo, UT, 84602, US
      40.249156 -111.649242
    • BYU-SPECIAL-COLLECTIONSBorrow it
      UT, US
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